When I’m bored or in a slump, learning something new revitalizes me. Gaining knowledge about Parkinson’s Disease makes me feel empowered. We are fortunate to have so many resources available to us at no cost such as webinars, seminars and videos. The following is a list that I’ve compiled for your learning pleasure:
Davis Phinney Foundation
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/
Living Well Today with Parkinson’s Disease with Monique Giroux, MD
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/living-well-today/
What’s Going on in My Gut? with Leslie Cloud, MD, MSc
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/gut-2/
The 10 Commandments of Living Well with Parkinson’s Disease with Susan Imke, FNP, GNP-C http://www.davisphinneyfoundation.org/living-pd/webinar/videos/10-commandments/
From Clear to Partly Cloud: Cognition and Parkinson’s Disease with Paul Short, PhD
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/cognition/
Nutrition and Parkinson’s Disease: Can Food Have an Impact? with Dr. Sarah Zangerle http://www.davisphinneyfoundation.org/living-pd/webinar/videos/nutrition-parkinsons-food-impact/
Gene Therapy for Parkinson’s Disease with Dr. William Marks
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/gene-therapy-parkinsons-disease/
What Does the Parkinson’s Research Mean to You? with Dr. Holly Shill
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/parkinsons-research-means/
How to Communicate with Your Doctor with Dr. Janet Chance
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/communicate-doctor/
Panel Discussion on Deep Brain Stimulation (DBS) with Dr. Melissa House
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/3942-2/
Sleep Disorders in Parkinson’s Disease with Dr. Gary Leo
http://www.davisphinneyfoundation.org/living-pd/webinar/videos/sleep-disorders-parkinsons-disease/
Voice Aerobics Videos about Speech, Voice, Swallowing Problems of Persons with PD
Voice Aerobics @ Home Online Coaching...Voice Coaching as Close as Your Computer
http://www.youtube.com/watch?v=FhIfqjdkyDA
Just hummm and find your natural voice http://www.youtube.com/watch?v=joiV-_mLq-c&NR=1&feature=endscreen
Parkinson's patient post speech therapy Voice Aerobics Songbirds
http://www.youtube.com/watch?v=qF74ZBZUzAM
Parkinson's swallowing exercises at home: How You Breathe Matters
http://www.youtube.com/watch?v=aIRuDmVoHkc
Parkinson's speech - Kate Kelsall gets a sample of what improvements in speech are possible http://www.youtube.com/watch?v=w-HfkQK4dnY
James, Parkinson's and DBS Discusses Positive Speech Effect From Auditory Masking
http://www.youtube.com/watch?v=Yq7OUE8X1V8&list=FLZEC83MV3biY8MlpHmPO32Q
Voice Aerobics DVD for PD
http://www.youtube.com/watch?v=66qP0BYORcU
Voice Aerobics DVD - 2
http://www.youtube.com/watch?v=P4dQsnRy1jk
Voice Amplifier Gives Power To Your Voice http://www.youtube.com/watch?v=oUYuvsqOUvY
Parkinson’s Disease Foundation
To get a list of webinars in the archives:
http://www.pdf.org/en/online_education_past
To get a list of upcoming upcoming online education: http://www.pdf.org/en/online_education_upcoming
Understanding Parkinson's
General Information
What is New in Genetics and Parkinson's Disease?******
http://www.pdf.org/en/parkinson_briefing_genetics
September 2012, one hour, Matthew Farrer, Ph.D.
Department of Medical Genetics
University of British Columbia, Vancouver, Canada
Understanding the Progression of Parkinson's*****
http://www.pdf.org/en/parkinson_briefing_progression
June 2012, one hour, Ronald F. Pfeiffer, M.D.
Professor and Vice Chair of the Department of Neurology
University of Tennessee Health Science Center
Memphis, TN
Understanding Pain in Parkinson's***
http://www.pdf.org/en/parkinson_briefing_understanding_pain
May 2011, one hour, Jeffrey Wertheimer, Ph.D.
Clinical Neuropsychologist
Cedars-Sinai Medical Center
Los Angeles, CA
Promise of Science, Power of the Individual****
http://www.pdf.org/en/seminar_power_promise
May 2011, two hours, Stanley Fahn, M.D., H. Houston Merritt Professor of Neurology Director of the Center for Parkinson’s Disease and Other Movement Disorders Columbia University; & Lisa M. Shulman M.D., Professor of Neurology University of Maryland School of Medicine.
Parkinson’s Disease and its Treatment Secrets, Myths and Misconceptions**
http://www.pdf.org/en/parkinson_briefing_treatments_myths
September 2009, one hour, Melissa J. Nirenberg, M.D., Ph.D.
Assistant Professor of Neurology and Neuroscience
Weill Cornell Medical College
What's New in PD Research?: A Closer Look at Genetics and PD
http://www.pdf.org/en/edu_events_new_research
September 2008, one hour, Susan Bressman, M.D.
Chair of the Alan and Barbara Mirken Department of Neurology
Beth Israel Medical Center
Motor Symptoms
Gait, Balance and Falls in Parkinson's Disease******
http://www.pdf.org/en/parkinson_briefing_gait_balance_falls
January 2013, one hour, Terry Ellis, P.T., Ph.D., N.C.S.
Clinical Professor, Boston University College of Health and Rehabilitation Sciences: Sargent College, in Boston, MA
Nonmotor Symptoms and Complications
Demystifying Hallucinations, Night Terrors and Dementia http://www.pdf.org/parkinson_briefing_benevilla
May 2013, two hours
Virgilio H. Evidente, M.D., Director of the Movement Disorders Center of Arizona & Rohit Dhall, M.B.B.S., M.S.P.H, Assistant Professor in the Division of Neurology and Director of the Deep Brain Stimulation (DBS) Clinic at Barrow Neurological Institute
Phoenix, AZ
Under-recognized Nonmotor Symptoms of Parkinson's Disease******
http://www.pdf.org/en/parkinson_briefing_nonmotor
March 2013, one hour,
K. Ray Chaudhuri, D.Sc., M.D.
National Parkinson Foundation International Centre of Excellence, Kings College London
London, United Kingdom
A Closer Look at Anxiety and Depression in Parkinson's Disease*****
http://www.pdf.org/en/parkinson_briefing_anxiety
March 2012, one hour,
Laura Marsh, M.D.
Michael E. DeBakey Veterans Affairs Medical Center and
Baylor College of Medicine
Houston, TX
Impulsive and Compulsive Behaviors in Parkinson’s*****
http://www.pdf.org/en/parkinson_briefing_impulsive_behaviors
September 2011, one hour
Daniel Weintraub, M.D.
University of Pennsylvania
Philadelphia, PA
Cognition and PD: What You Have Always Wanted to Know But Were Too Afraid to Ask***
http://www.pdf.org/en/parkinson_briefing_cognition
March 2011, one hour
Alexander I. Tröster, Ph.D.
Professor of Neurology
University of North Carolina at Chapel Hill
Fatigue, Sleep Disorders and Parkinson's Disease**
http://www.pdf.org/en/parkinson_briefing_sleep_fatigue
June 2010, one hour, Joseph Friedman, M.D.
Director of the Movement Disorders Program, Butler Hospital
Professor & Chief of Movement Disorders, Warren Alpert Medical School of Brown University
Mind, Mood & Body: Understanding Nonmotor Symptoms of PD*
http://www.pdf.org/en/edu_events_michigan
July 2008, several hour-long sessions
Ronald Pfeiffer, M.D., University of Tennessee Health Science Center; Matthew Menza, M.D., Robert Wood Johnson Medical School, Peter LeWitt, M.D., Henry Ford Hospital
The Other Side of Parkinson’s Disease
http://www.pdf.org/parkinson_pdwebcast_other_side_parkinson
October 2009, one hour,
W. Lawrence Severt, M.D., Ph.D.
Attending Physician
Beth Israel Medical Center
Clinical Studies
Parkinson's Advocates in Research Course
http://www.pdf.org/en/paironline
June 2012, four one-hour sessions
James Beck, Ph.D., PDF; Claire Henchcliffe, M.D., D.Phil., NewYork-Presbyterian Hospital/Weill Cornell Medical Center; Joohi Jimenez-Shahed, M.D., Baylor College of Medicine; Stewart A. Factor, D.O., and Melanie Pearson, Ph.D., Emory University
Inside Clinical Trials: What You Need to Know
http://event.netbriefings.com/event/pdtrials/Archives/July2010/register.html
July 2010, one hour
Danna Jennings, M.D., Clinical Research Director, Institute for Neurodegenerative Disorders & Steve DeWitte, Business Executive, Graduate of PDF Clinical Research Learning Institute
Lessons Learned: How Completed Parkinson’s Clinical Studies Help Shape the Future
http://event.netbriefings.com/event/pdtrials/Archives/learn0510/register.html
May 2010, one hour,
Bernard Ravina, M.D., M.S.C.E.
Associate Professor of Neurology
University of Rochester School of Medicine and Dentistry
Participating in Parkinson's Clinical Research:
The Key to Becoming an Informed Study Volunteer
http://event.netbriefings.com/event/pdtrials/Archives/infvol/register.html
January 2009, one hour
Ken Getz, M.B.A.
Chairman, Center for Information & Study on Clinical Research Participation
Living with Parkinson's
Driving and Parkinson's: Balancing Independence and Safety*****
http://www.pdf.org/en/parkinson_briefing_driving
January 2012, one hour
Margaret O’Connor, Ph.D., A.B.P.P., and Lissa Robins Kapust, L.I.C.S.W.
Beth Israel Deaconess Medical Center,
Boston, MA
Treating Parkinson's
Medications & Surgical Treatments
PD ExpertBriefing: Medical Therapies: What's in the Parkinson's Pipeline?
http://www.pdf.org/parkinson_briefing_medtherapies
April 2013, one hour
Kapil D. Sethi, M.D., F.R.C.P.
Georgia Regents University
Augusta, GA
Parkinson's Medications: Today and Tomorrow*****
http://www.pdf.org/en/parkinson_briefing_medications
April 2012, one hour,
Cynthia L. Comella, M.D., F.A.A.N.
Rush University Medical Center
Chicago, IL
The Parkinson’s Pipeline: Treating Your Parkinson's***
http://www.pdf.org/en/parkinson_briefing_pipeline11
April 2011, one hour,
Michael Schlossmacher, M.D.
University of Ottawa
Ottawa, Canada
What’s in the Parkinson’s Pipeline?**
http://www.pdf.org/en/parkinson_briefing_pipeline
April 2010, one hour,
David Standaert, M.D., Ph.D.
John and Juanelle Strain Professor & Vice Chair, Neurology
University of Alabama at Birmingham
New Prospects for Slowing the Progression of Parkinson's Disease
http://www.pdf.org/en/edu_events_new_prospects
March 2009, one hour,
Claire Henchcliffe, M.D., D.Phil.
Director of the Parkinson’s and Movement
Disorders Institute at Weill Cornell Medical Center
Surgical Advances in Parkinson's*
http://www.pdf.org/en/edu_events_washington
October 2008, several hour-long sessions
,Sierra M. Farris, M.P.A.S., PA-C & Monique L. Giroux, M.D. Booth Gardner Parkinson’s Care Center; Jaimie M. Henderson, M.D., Stanford University School of Medicine; Jeffrey H. Kordower, Ph.D., Rush University Medical Center
What's in the PD Pipeline?*
http://www.pdf.org/en/edu_events_carolinas
May 2008, several hour-long sessions
Katrina Gwinn, M.D., Baylor College; Mark Stacy, M.D., Duke
University Medical Center; Clive Svendsen, Ph.D., University of Wisconsin-Madison
Nutrition, Exercise and Other Therapies
Improving Communication in Parkinson's Disease:
One Voice, Many Listeners**
http://www.pdf.org/parkinson_briefin_improvingcom
June 2013, one hour,
Angela Roberts-South, M.A., C.C.C.-S.L.P., C.A.S.L.P.O .(Reg.), Ph.D. Candidate
Health and Rehabilitation Sciences, Western University, Ontario, Canada
Conplimentary Approaches to Parkinson's http://www.pdf.org/en/parkinson_briefing_complementary
June 2011, one hour
Melanie M. Brandabur, M.D.
Clinic Director
The Parkinson's Institute and Clinical Center, Sunnyvale, CA
Physical Therapy and Parkinson's: What You Need to Know***
http://www.pdf.org/en/parkinson_briefing_physical_therapy
February 2011, one hour,
Heather J. Cianci P.T., M.S., G.C.S.
Dan Aaron Parkinson's Rehabilitation Center (Good Shepherd/Penn Partners)
Nutrition and Parkinson’s Disease**
http://www.pdf.org/en/parkinson_briefing_nutrition
February 2010, one hour,
Christine C. Tangney, Ph.D., F.A.C.N., C.N.S
Associate Professor of Clinical Nutrition
College of Health Sciences at Rush University Medical Center.
Taking Charge of Your Parkinson's*,
http://www.pdf.org/en/edu_events_texas
April 2009, several hour-long sessions
Julie H. Carter, R.N., M.S., A.N.P., Oregon Health & Science University; Gammon M. Earhart, Ph.D., P.T., Washington University School of Medicine; Giselle Petzinger, M.D., University of Southern California; Concetta Tomaino, D.A., MT-BC, LCAT, Beth Abraham Family of Health Services
Employment, Insurance, Financial Assistance and Legal Matters
Legal Issues: Planning Ahead When You are Living with Parkinson's**
http://www.pdf.org/en/parkinson_briefing_legal_issues
January 2010, one hour
Janna Dutton, J.D.
Eldercare Attorney
Dutton & Casey, P.C.
Caregiving & Family Support
Coping Skills for Parkinson's Care Partners******
http://www.pdf.org/en/parkinson_briefing_caregiver12
November 2012, one hour, Julie H. Carter R.N., M.S., A.N.P.
Professor of Neurology
Oregon Health & Science University
Caring for A Person with Late Stage Parkinson's Disease *****
http://www.pdf.org/en/parkinson_briefing_caring_late_stage
November 2011, one hour,
Joan Gardner, R.N., B.S.N. and Rose Wichmann, P.T. of Struthers Parkinson's Center, Park Nicollet Health Services in Minneapolis, MN
What's Missing? Communication and the PD Partnership***
http://www.pdf.org/en/parkinson_briefing_missed_communication
November 2010, one hour,
Teresa Deshefy-Longhi, DN.Sc., R.N.
Visiting Assistant Professor
Fairfield University
How to Take Care of the Caregiver **
http://www.pdf.org/en/parkinson_briefing_caregiver
November 2009, one hour
Barbara Habermann, Ph.D.
Associate Professor of Nursing
Indiana University-Indianapolis
