Caregivers: Your Input Is Valuable

Caregivers of Persons with Parkinson’s Disease

Be part of an important Parkinson’s disease (PD) study:

• Are you a primary caregiver of a person with PD?

• Do you want to talk about your experiences in caring for the person with PD?

If you answered YES to these questions, you may be eligible to participate in a PD study.

The Research: The purpose of this study is to determine how caregivers define the concept of caregiver strain in light of caring for persons with PD. The results of the study will help to develop a new questionnaire to accurately measure caregiver strain. The knowledge gained from this research project may be used to improve training for health care workers to help persons with PD and their families.

How You Can Help: Your input is important because it offers you an opportunity to be heard and it will help people in the health care field understand your care giving experiences, which in turn, will create better ways to improve services for you and other caregivers now and in the future.

Persons eligible to participate are caregivers who are 21 years of age and older and are or have been the primary caregiver of a person with PD. Caregivers can be spouses, adult children, other family members or close friends of the person with PD.

This study involves participating in an online survey which will take about 20 minutes. The survey questions will include sharing your caregiving experiences, how you view caregiving and how your define caregiving concepts. Your participation is voluntary. Your identity will not be recorded. In any sort of report we might publish, we will not include any information that will make it possible to identify a participant.

If you are an informal caregiver of a person with PD or know of one, and wish to take part in this study, please go to the following website to complete a general demographic form and the survey:

http://tinyurl.com/7nwd4gb

If you would like to learn more about this research project, send an email to Dr. Maryann Abendroth at [email protected] or call at 1-850-644-5979.

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