Spread the Good Word about Clinical Research

I was fortunate enough to be selected to attend the 2009 Clinical Research Learning Institute (CRLI) sponsored by the Parkinson’s Disease Foundation (PDF). It was a phenomenal experience! Everything about it -- from the speakers to the materials to the PDF staff to the accommodations to the fellow participants -- was first class! 

 

PDF is now accepting applications for the 2010 Clinical Research Learning Institute (CRLI), to be held October 21 through October 23, 2010. This year’s Learning Institute will be held in Florham Park, New Jersey and is free of charge, with PDF assuming the costs for participant travel and accommodations.

 

As a CRLI graduate, I’d like to encourage you to inform others who have an interest in Parkinson’s Disease clinical research about this worthwhile opportunity.

 

Dear Friend of PDF, You can contribute to the development of new treatments and a cure for Parkinson’s. How? Apply to the 2010 Clinical Research Learning Institute by Friday, August  27.

Apply Today PDF invites you to apply for a spot at this year’s Clinical Research Learning Institute, a three-day program that trains people living with Parkinson’s to serve as clinical research advocates.   Thursday, October 21 – Saturday, October 23 Florham Park, NJ   Applications Due: Friday, August 27 (enrollment is limited) The Learning Institute offers educational sessions and workshops that will prepare graduates to: Educate their communities about clinical study participation Work with industry and academia to ensure the voices of people living with Parkinson’s are heard Serve as formal representatives on clinical research review and advisory boards (e.g., Institutional Review Boards and Data Safety Monitoring Boards) Work with PDF and other graduates on an ongoing basis to further Parkinson’s research To be eligible, an applicant must be a person with Parkinson’s Disease, living in either the US or Puerto Rico. For those who are selected to attend the Learning Institute, all expenses (registration, travel, hotel, accommodation, meals, etc.) will be covered by the Parkinson’s Disease Foundation.

An application can be downloaded from the PDF website at http://www.pdf.org/crli. 

 

Individuals without Internet access may contact Ronnie Todaro at rtodaro@pdf.org or (800) 457-6676 for an application.  

 

The deadline for applying is August 27, 2010.

 

Thanks in advance for helping to spread the word!

Comments

[Kristie Jonsen]

Hello,

Over the past few years, I have come across your website, and I have found the information to be very helpful. It's nice to know the symptoms I experience are shared by others, and "normal." I started writing a gratitude blog about my everyday life in So Cal, and I have started including a little bit about PD. I'd like people to see the faces behind the disease. At 40 (now I'm 43) and always really active, PD was the last thing I ever considered having. I was hoping it was hormones, since my symptoms are worse during certain times of the month.

Anyway, I thought I could get through this disease without the help and support of other patients. I was wrong. I've linked up with Patrick at "Move to Live" and I'll attach your site to mine as well. I focus on the positive, and try not to complain, but Geez, it's certainly difficult at times. I attended the MJFF Research Round Table in Beverly Hills a couple months ago, and I do donate to his charity. I am hoping to get involved so we can shed more light on this disease -- and of course, the young onset part, which is shocking to most people.

Thank you for the information you have unknowingly shared with me during one of the most pivotal times in my life.

Life is good!

kj