Living with Parkinson ‘s Disease (PD) and Deep Brain Stimulation (DBS), I’ve often asked myself the question, “Why me?”
Mary Spremulli addressed this issue in her insightful article "Why Me?" Might Be a Question for Good Times and Bad When Living from the Heart at: http://voiceaerobicsdvd.blogspot.com/2012/12/whyme-might-be-question-for-good-times.html
More recently, I’ve also added the following questions:
"Why not me?"
“Why her or him?”
“Why not her or him?”
Living with PD and DBS is a mixed bag. It results in a lot of grumbling on my part about the negative aspects of the disease and the surgery. I complain about my devastated voice caused by PD and DBS. I frequently “why me” about being diagnosed with PD at the age of 46 nearly 17 years ago. I bemoan the loss of my “real” (e.g., paid) job and professional career. I whine about the extreme movement or the lack of movement caused by this movement disorder.
In the past, I’ve ruminated about the problems that I’ve experienced as a result of PD and DBS. However, in moving forward, I am challenging myself to ask the same “why” questions about the blessings in my life that have occurred as a result of living with PD and DBS. Blessings include making new friends like Mary Spremulli and the reward of gratifying work with my friend and colleague, Valerie Graham, in assisting individuals and their families as volunteers at hospitals and through the Bionic Brigade (Denver’s DBS support group).
To help rethink the circumstances of our lives, ask the “why” questions about the good, the bad, and the ugly aspects of living with PD and DBS. When we’re able to use whatever difficulties we’ve experienced to help others, then all of our suffering and struggles are elevated to a higher level beyond ourselves. This just may lead us down the road to meaningful and purposeful lives.
And on the lighter side:
“When his life was ruined, his family killed, his farm destroyed, Job
knelt down on the ground and yelled up to the heavens, "Why god? Why
me?" and the thundering voice of God answered, There's just something
about you that pisses me off.” ― Stephen King
“Sometimes I lie awake at night and ask why me? Then a voice answers nothing
personal, your name just happened to come up.” ― Charles M. Schulz