Caregivers and care partners aren't usually asked their opinion about their communication with the Parkinson’s patient and how it impacts them.
However, Dr. Jessica Huber, a researcher at Purdue University, wants your opinion and is currently conducting an online survery for caregivers/care partners regarding speech and voice and a new device intervention for improving communication.
Spend 15 minutes completing this worthwhile survey. You will be contributing to the knowledge about the effects of treatment for speech impairments in individuals Parkinson’s disease on caregiver burden. The link to the survey: https://www.surveymonkey.com/s/SpeechVive
SpeechVive Research Participant Information Sheet
SpeechVive™ Survey for Caregivers for Individuals with Parkinson’s disease
Researcher: Jessica E. Huber, Ph.D, Purdue University Department of Speech, Language, and Hearing Sciences
Purposes of Research: The purpose of this research is to survey caregivers of individuals with Parkinson’s disease and gather information regarding SpeechVive™, a new treatment for reduced vocal loudness levels (hypophonia) related to Parkinson’s disease.
Specific Procedures to be Used: We will provide you with a survey to complete regarding a new treatment for speech impairments in individuals with Parkinson’s disease, SpeechVive™.
Duration of Participation: The survey should take approximately 15 minutes to complete. The survey can be emailed or mailed to you. We can process your answers over the phone, or we can bring the survey to you in person. The survey can be accessed online.
Risks to the Individual: Participating in the survey is of minimal risk to you, equal to that which is found in everyday life. Some of the material on the survey may be considered sensitive or distressing. There is a risk of breach of confidentiality. However, safeguards are in place to minimize this risk.
Benefit to the Individual or Others: There are no direct benefits to subjects. By completing the survey, you will be contributing to our knowledge about the effects of treatment for speech impairments in individuals Parkinson’s disease on caregiver burden. This knowledge may help to improve speech treatments for people with Parkinson’s disease and reduce caregiver burden associated with treatment.
Compensation: There is no compensation for participation in this study.
Extra Costs to Participate: There are no extra costs for you related to your participation in this study.
Confidentiality: Your confidentiality will be kept throughout the duration of the study. When the results of this research are published or presented at scientific meetings, your identity will not be disclosed. Your responses to the survey will not be released at any time with your personal information. Records that contain personal identifying information and materials generated by your participation in this study will be kept in a locked cabinet in the speech physiology laboratory (B24 Heavilon). Records with personal identifying information will be stored separate from any records of data collected from you. All data will be maintained and analyzed on a password protected computer in B24 Heavilon. Only the investigators and lab associates who are working on the project will have access to your records and data. All records and data files will be kept indefinitely. The data files may be used for future studies, but your name will not be associated with your records. If they are eventually destroyed, papers will be shredded and computer files will be deleted. The project's research records may be reviewed by departments at Purdue University responsible for regulatory and research oversight.
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