From the Patient’s Perspective – Take This Online Survey

 

The Parkinson Alliance is committed to helping improve the quality of life of people who have Parkinson’s Disease (PD) and their caregivers. One facet of their many goals is to contribute to the improvement of quality of life through conducting survey-based research to obtain the “patient perspective” about the experience of PD for those with and without Deep Brain Stimulation (DBS).  You are invited to participate in their current survey on “Fatigue and Apathy”.  Please visit:  www.dbs-stn.org to take this survey.  Thank you.

Comments

[Kellie Grey]

Despite having the first session of DBS surgery in November of 2009 (followed a week or so later with the second), I do NOT feel that I am doing well. I never had the tremors so often associated with Parkinson's. No one was by my side as I had my surgery to "monitor" the progress. I was told by the neurosurgeon that there were eight electrodes inserted, which concerns me, as it seems like a lot. Could it be possible that it is too crowded in there? Benefit has been negligible, if at all. I am quite discouraged with the outcome. Thoughts?