New Parkinson's Disease Online Resource Now Available

New Parkinson's Disease Online Resource Now Available
From: Medical News Today
Aug 2, 2007

Consumers searching for information on Parkinson's disease, a progressive neurological condition that affects more than 1.5 million Americans, now have a new online destination. The Parkinson's Disease Blog Network (http://www.parkinsonsblognetwork.com) is the first site to centralize these individual perspectives, helping consumers to quickly identify the most relevant and useful information for any given situation. Oversight by an advisory board of patients and medical experts ensures content accuracy.

"The Parkinson's community is highly motivated, frequently turning to the Internet as an outlet for support and information once they or a loved one have been diagnosed," said Dr. Neal Hermanowicz, a member of the Parkinson's Disease Blog Network advisory board and professor in the department of neurology and director of the Movement Disorders Program at the University of California, Irvine, College of Medicine. "The Parkinson's Disease Blog Network provides a reliable, centralized online source for those pressed for time or limited by access or ability."

The Parkinson's Disease Blog Network was developed and is maintained by Incendia Health Studios, an inVentiv Health company. It has been designed to serve as a real-time, virtual Parkinson's disease discussion and community forum, allowing users to exchange information and thoughts on topics ranging from symptoms to diet and treatment. All blogs registered on the network are listed with a brief descriptor and assigned to one of three categories: resource, medical or personal. Each includes a space for user comments, a five-point rating scale and also tracks the number of "views". This allows the blogs found to be the most useful to be most prominently featured.

Kate Kelsall, author of the site's top-rated blog, Shake, Rattle and Roll, explains, "Many of us with Parkinson's disease feel isolated and lonely. Even after diagnosis, we are scared of what lies ahead. Connecting online with others who have the same disease can be reassuring. By sharing hopes and providing support for each other, we find commonality and realize we are not alone."

Support for the development of the Parkinson's Disease Blog Network was provided by Valeant Pharmaceuticals International. To learn more or register your blog, visit http://www.parkinsonsblognetwork.com.

About Incendia Health Studios

Incendia Health Studios, is the first and only 'purpose-driven' media company in the field of chronic disease education. The company develops and distributes unbranded disease-education content targeting the millions of people who use the Internet and other digital technologies to seek and share information on chronic diseases. Incendia Health Studios is located at 8961 Research Drive, Suite 100, Irvine, CA 92618. For additional information, visit http://www.IncendiaHealth.com

About inVentiv Health

inVentiv Health (NASDAQ: VTIV) is the leading provider of commercialization and complementary services to the global pharmaceutical, life sciences and biotechnology industries. inVentiv delivers its customized clinical, sales, marketing and communications solutions through its three core business segments: inVentiv Clinical, inVentiv Communications and inVentiv Commercial. inVentiv Health currently works with over 200 unique pharmaceutical, biotech and life sciences clients, including all top 20 global pharmaceutical companies.

http://www.inventivhealth.com
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Article URL: http://www.medicalnewstoday.com/articles/78437.php

Main News Category: Parkinson's Disease

Also Appears In: Neurology / Neuroscience,

Comments

[Carol D. O]

I'm so glad to see the Parkinson's Blog Network develop. I cared for my mom who suffered from Parkinson's for almost 15 years.

I wrote every day of the last three years she lived with me. I wrote about my fears and isolation--what you elude to in your article.

I know it all too well.

Writing or blogging can keep a caregiver alive--the ability to step out of one's circumstances and observe them in a third person perspective can allow us to kinder to ourselves, more patient, and see the bigger picture.
I look forward to participating.

My journals became a book, MOTHERING MOTHER: A Daughter's Humorous and Heartbreaking Memoir,

available on Amazon and in most bookstores.
I wrote it so others won't have to feel so alone.
~Carol D. O'Dell

[Camilo]

Parkinson's disease is a big problem. This sickness needs to be treated for the rest of the life. When a person suffers of Parkinson's disease, she must be conscient that this problem is difficult to control and requires a lot of patience. When a young person has this health problem, she generally don't feel like living.
You must know that PD is a degenerative disorder ot the cenral nervous system and affects movements and speech. You can feel postural instability, rigidity, fail in your reflexes and pain in your articulations and muscles.
Take care of this sickness and don't loss the patience, because not all it's bad.

There are some solutions to control this problem; treatmnets with therapy and drugs.

If you want to know about this kind of drugs, please visit this website:

http://www.todoenmedicamentos.com

[Kate Kelsall]

Thanks, Camilo, for the information on PD medication.